British Pain Society. This website provides valuable information for patients with pain conditions, and details of various support groups, including guidance.
Pain concern website. It provides support for those with pain and their carers, and has factsheets and leaflets on different aspects of chronic pain and self-management. It also contains Airing Pain, a series of regular podcasts on living with pain, which can be downloaded for free.
http://www.aci.health.nsw.gov.au/chronic-pain This is a valuable and recent resource sponsored by the New South Wales Government of Australia for their population. However the videos and content are quite easily generalizable for most populations.
Flippin’ Pain™ is a public health campaign with a clear goal which is to change the way we think about, talk about and treat persistent pain and essentially to Flippin’ your understanding of pain which could change the lives of you and your loved ones forever. Dr. Ravindran was part of their first ever UK campaign in Lincolnshire in 2021 and did a charity bike ride covering more than 300 miles over 5 days talking to the general public and raising awareness about pain and the treatment options.
Livewell with Pain: This website is for people who are living with persistent pain and those who support them. Since traditional medical treatments such as pain medicines are now recognised as having only limited value, this website promotes a self management approach as a different way of living with persistent pain and living well with pain. Dr Ravindran has worked with this group and has done a few webinars with them which can be accessed here.
Curable: This fantastic app and resource from the USA has one mission which is to reach every person with chronic symptoms, and present them with the opportunity to improve their lives. They aim to take the latest research in pain science and make it easy to understand, convenient to use, and affordable to access with or without insurance. Dr Ravindran is part of the scientific advisory board and has done a podcast with them and recommends them to his patients often with good outcomes.
Self help resources
- This is an excellent short video from Australia explaining some recent research based understanding of physiology and effects of pain through the medium of white board animation. Understanding pain www.youtube.com/watch?v=ksNfgE3pVBw
- Tedx Talks. This is an informative and highly entertaining talk from an eminent neuroscientist Lorimer mosely. www.youtube.com/watch?v=gwd-wLdIHjs
- Low back pain: Another very good video regarding low back pain causes. whiteboard animation www.youtube.com/watch?v=BOjTegn9RuY
- Pain toolkit
- Pelvic Pain
- Pain CD/DVD ‘Living with Chronic Pain’ – Neil Berry. Information on various aspects of pain management, including sleep, goal-setting, medication and relaxation techniques. This is available to download for free at www.paincd.org.uk, or you can buy the CD from the same website.
- https://painuk.org/ This is an alliance of charities formed in 2011 catering to the needs of people in pain.
- Books that have shown to be useful:
i.Burch, V. (2008). Living well with pain and illness: the mindful way to free yourself from suffering. London: Piatkus Books.
ii.Burch, V. (2013) Mindfulness for health: A practical Guide to relieving pain, reducing stress and restoring well being. London: Piatkus Books
iii.Butler, D., & Moseley, L. (2003). Explain pain. Adelaide, South Australia: Noigroup Publications.
iv.Fibromyalgia specific publications are:
- Managing Pain Before It Manages You by Caudill
- From Fatigued to Fantastic by Jacob Teitelbaum
- Figuring out Fibromyalgia by Ginevra Liptan
- Living with Fibromyalgia by Christine Craggs-Hinton